He texted me this picture when he got me lost yesterday and I had to
ride 9 miles In 97 degree heat 50% humidity... I forgave him... Who
can resist that puppy dog face, lol
Team FARA members are running, walking, biking and swimming for FA research around the world. While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.
19.6.10
Healthy Break
Team FARA riders and crew have been working nonstop for 7 days now. We
have been kicking butt and had a rough, wet night last night so we
took 2 hours this afternoon to regroup and make the final push for the
finish. We reflected on the past week and we are all overehelmingly
proud of how far we have come but we realize that we are not done yet.
have been kicking butt and had a rough, wet night last night so we
took 2 hours this afternoon to regroup and make the final push for the
finish. We reflected on the past week and we are all overehelmingly
proud of how far we have come but we realize that we are not done yet.
We just got back on the road more focused than ever with our sights
set on the finish line.
Predicted Time Station Arrivals Update
Approaching Athens, OH! Use this link to view Predicted Time Station Arrivals and check our progress on the RAAM map. This should help since the GPS tracking linked on our blog is currently not signaling. Less than 500 miles to go!
http://www.raceacrossamerica.org/raam/rcfrcast.php?s_N_Entry_IDx=2618&s_N_Year_ID=33
http://www.raceacrossamerica.org/raam/rcfrcast.php?s_N_Entry_IDx=2618&s_N_Year_ID=33
Join TEAM FARA
Team FARA is not just this team or this race, it is a greater effort with many participants all with similar goal to stay fit, challenge yourself, raise awareness for Friedreich's Ataxia (FA) and support FA research.
Join TEAM FARA!
Team FARA members are running, walking, biking and swimming for FA research around the world. While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.
About Team FARA
Team FARA is made up of people around the globe who participate in endurance events on behalf of the Friedreich's Ataxia Research Alliance (FARA) with the goal of raising awareness and funds for FA research. Past Team FARA members have registered as individuals and groups in local marathons, ½ marathons, triathlons, ironman competitions, bike tours and 5K runs. With the FARA name in their fundraising materials, local press releases, and on their race jerseys, Team FARA members are introducing the general public to this rare disease and the importance of supporting FA research.
Join Team FARA
You can join Team FARA simply by registering in a local athletic event of your choice and deciding to do so in FARA's name. FARA will provide a fundraising webpage for you to customize with a photo and information about your event participation. FARA will also work with you to generate a press release and a strategy for local press coverage of your endurance event and campaign for FA research. Finally, FARA will supply you with either a Team FARA running jersey or t-shirt to be worn at your event. Your supporters also have the opportunity to purchase Team FARA t-shirts to wear as they cheer you on.
If you're interested in joining Team FARA, please contact us at info@cureFA.org
If you are looking for an event, join me at Ride Ataxia Philadelphia, 10/10/10. This is a great event with distances for all levels of riders.
Most importantly, Get out there and Educate, Empower and Enable!
Join TEAM FARA!
Team FARA members are running, walking, biking and swimming for FA research around the world. While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.
About Team FARA
Team FARA is made up of people around the globe who participate in endurance events on behalf of the Friedreich's Ataxia Research Alliance (FARA) with the goal of raising awareness and funds for FA research. Past Team FARA members have registered as individuals and groups in local marathons, ½ marathons, triathlons, ironman competitions, bike tours and 5K runs. With the FARA name in their fundraising materials, local press releases, and on their race jerseys, Team FARA members are introducing the general public to this rare disease and the importance of supporting FA research.
Join Team FARA
You can join Team FARA simply by registering in a local athletic event of your choice and deciding to do so in FARA's name. FARA will provide a fundraising webpage for you to customize with a photo and information about your event participation. FARA will also work with you to generate a press release and a strategy for local press coverage of your endurance event and campaign for FA research. Finally, FARA will supply you with either a Team FARA running jersey or t-shirt to be worn at your event. Your supporters also have the opportunity to purchase Team FARA t-shirts to wear as they cheer you on.
If you're interested in joining Team FARA, please contact us at info@cureFA.org
If you are looking for an event, join me at Ride Ataxia Philadelphia, 10/10/10. This is a great event with distances for all levels of riders.
Most importantly, Get out there and Educate, Empower and Enable!
Blanchester
Blanchester, Ohio....we're not positive where these signs came from, but we appreciate them nonetheless!! Maybe that support ran out of waiting time? Who knows. Thank you secret operatives of Blanchester!
Sent from my Verizon Wireless BlackBerry
Sent from my Verizon Wireless BlackBerry
Good morning!
After a night of battling a serious downpour the sun rises again and
the next shift looks to face another wet storm headed our way.
the next shift looks to face another wet storm headed our way.
18.6.10
Saturday Challenge
At the beginning of the ride Kyle announced a goal of 1000 visits to the blog in a single day. We have gotten close... we have 920 visits in a day and we have had >2600 unique visitors but we have not had 1000 visits in a day.
As the team races through Ohio and West Virginia on Saturday lets see if we can get people to give up their chores and check out the blog.
Goal: 1000 visits to the blog on Saturday!
As the team races through Ohio and West Virginia on Saturday lets see if we can get people to give up their chores and check out the blog.
Goal: 1000 visits to the blog on Saturday!
Hometown Friends
Emily and family drive 4 hours just to show their support on a random
Indiana road. Emily and I went to highschool together and I am good
friends with her brother Matt. Thanks for the support!
Indiana road. Emily and I went to highschool together and I am good
friends with her brother Matt. Thanks for the support!
Mike as McGyver
So...we've managed to collect about 87 live, annoying, pesky flies in this RV, but for some reason its been impossible to get fly traps that meet some of the crews' "safe chemicals" standards, or even a fly-swatter. These stupid flies keep us awake when they consistently land on our faces! But fear no longer team & crew, Racer Mike has improvised and made 6 fly traps of his own! In your face flies!
Sent from my Verizon Wireless BlackBerry
Mike as McGyver
So...we've managed to collect about 87 live, annoying, pesky flies in this RV, but for some reason its been impossible to get fly traps that meet some of the crews' "safe chemicals" standards, or even a fly-swatter. These stupid flies keep us awake when they consistently land on our faces! But fear no longer team & crew, Racer Mike has improvised and made 6 fly traps of his own! In your face flies!
Sent from my Verizon Wireless BlackBerry
It is all about the mission!
I am so excited by the number of people we have had visiting the blog and spreading the word on Facebook. We wanted to do RAAM to raise awareness and educate people about Friedreich's ataxia and FARA's mission to bring treatments forwarded even faster.
What is Friedreich's Ataxia (FA)?
Friedreich's Ataxia is a progressive, neurodegenerative condition that dramatically, unexpectedly alters lives causing:
*Loss of coordination and muscle weakness in the arms and legs
*Energy deprivation/fatigue
*Vision impairment, hearing loss, and slurred speech
*Agressive scoliosis
*Diabetes
*Life-shortening cardiac disease
What is FARA?
The Friedreich's Ataxia Research Allianceis a non-profit organization dedicated to curing Friedrech’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.
Today, individuals with FA are hopeful due to significant research breakthroughs that FARA has helped facilitate over the last decade. We are now in the "treatment era" as clinical trials are in progress. Each day, the FARA scientific community moves closer to realizing our goal of slowing, stopping, reversing and ultimately curing FA. Freedom from the debilitating, devastating effects of FA is on the horizon.
Learn more about FA, FARA and the research progress at:
http://www.curefa.org/
"Acting alone there is very little any of us can accomplish. Acting together, there is very little we will NOT accomplish."
Back to the road!
What is Friedreich's Ataxia (FA)?
Friedreich's Ataxia is a progressive, neurodegenerative condition that dramatically, unexpectedly alters lives causing:
*Loss of coordination and muscle weakness in the arms and legs
*Energy deprivation/fatigue
*Vision impairment, hearing loss, and slurred speech
*Agressive scoliosis
*Diabetes
*Life-shortening cardiac disease
What is FARA?
The Friedreich's Ataxia Research Allianceis a non-profit organization dedicated to curing Friedrech’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.
Today, individuals with FA are hopeful due to significant research breakthroughs that FARA has helped facilitate over the last decade. We are now in the "treatment era" as clinical trials are in progress. Each day, the FARA scientific community moves closer to realizing our goal of slowing, stopping, reversing and ultimately curing FA. Freedom from the debilitating, devastating effects of FA is on the horizon.
Learn more about FA, FARA and the research progress at:
http://www.curefa.org/
"Acting alone there is very little any of us can accomplish. Acting together, there is very little we will NOT accomplish."
Back to the road!
Yet another transition
Transitions keep happening, different times different places... It
kinda like life always adapting to situations and circumstances but
the main thing is that not all transitions are smooth sometimes they
don't go exactly as planned but if you push hard you will reach the
finish! Oh and just for the record I think the crew has our
transitions down to a science now... Haha it was a little rough going
in the beginning lol! Like when john left the transition area even
though the other ride hadn't made it there yet, we got the
comunication going now though!!!
kinda like life always adapting to situations and circumstances but
the main thing is that not all transitions are smooth sometimes they
don't go exactly as planned but if you push hard you will reach the
finish! Oh and just for the record I think the crew has our
transitions down to a science now... Haha it was a little rough going
in the beginning lol! Like when john left the transition area even
though the other ride hadn't made it there yet, we got the
comunication going now though!!!
Bubbles
You know it's a good morning when tracy busts out the bubbles while we
are leapfrogging... Good thing cause I needed a pick-me-up this morning!
are leapfrogging... Good thing cause I needed a pick-me-up this morning!
Subscribe to:
Posts (Atom)











