Team FARA members are running, walking, biking and swimming for FA research around the world. While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.
25.6.10
A Long Winded Conclusion
I joined Team FARA because I am terribly vulnerable to Kyle's sales pitches. Upon arriving in Oceanside, I will now admit, I had no idea what I had gotten myself into. Other than what the title implies, the Race Across America was a mystery to me; turns out, this was a good thing. As the race rules, crew rotations & required equipment were revealed, I found myself questioning the sanity of the riders and the crew I was about to join on this journey (especially that of Sheriff Gore).
(crazy right?)
Along the course of this ride, we traveled 3,000 miles through 12 states in just over 200 hours. We hoisted the bikes/trikes on to their respective racks over 500 times. We consumed hundreds of sandwiches & wraps (although surprisingly only one PBJ wrap) and drank enough caffeine to at least accommodate the morning rush at your local Starbucks (perhaps Tracy can back me up on this one). We experienced rural America at the comfortable speed of 15.1 MPH, although we would have liked to pick this pace up a bit in Kansas (only joking Kansas - your sunsets and Buffalo meat alone were worth the journey). We encountered an assortment of weather: hot, cold, humid, rain, lightning and wind to name a few.
(see what I'm talking about - Kansas is what's happening)
The crew was unphased by sleep deprivation, hilarious comments from navigators or annoyingly late camera guys - keeping the riders safe at all times and only seldom leading them off course (sorry Sean Baum). The RV, despite its overstuffed nature (both human and let's just say "crap") was at all times a sanctuary - all the credit in the world to Diane, Tracy & Paul. The riders were an inspiration, waking up only four hours after their last shift to go do it again, almost always (exception, Sean Baum) with a smile on their face.
Unlike most teams, Team FARA gained momentum throughout the race. The supporters that drove for hours to cheer us on, gave us inspiration. The letters provided by Mary lifted us up. And the bonds that we developed with our fellow crew members gave us even more reason to be there. While I signed up for this trip to support my friend Kyle, by the third day I realized all that I was fighting for: Mary and her daughters, Mike & Diane, Felicia, Sean, Bob, Steve & Erin, Paul, Mike A, Sheriff Gore & Sam, Phil, Aaron, Deputy Lockwood, Mike M & Tracy; for supporters along the way and those awaiting our arrival at the finish; for those checking the blog on a daily basis; for hope. I wasn't the only one subject to this infectious force. We were joined by a camera crew, which through countless hours of driving behind four inspirational riders, saw their passion for a film grow into passion for a cause. It is only through their commitment (and repeated acts of God), that their beater RV (Rainbow Fox) made it across the country...now I wonder if it will make it back.
To my friend Kyle: you are amazing. After every pull as I would help lift you out of the trike - I pondered how many people you were helping to lift up in some way (myself included). I know you are inspired by those supporting you; but you will never know how much inspiration you provide. Suffice to say, you are the world's smallest Barney (but a Barney nevertheless). I will follow you, wherever you may go (just steer clear of Kansas in the future). I love you, man.
Lastly (yes, this should indicate I'm almost done here), I must comment on Team FARA's #1 finish. Because the other team in our division did not finish, we took first place and were quite literally the only team in our division. I find this fitting because there really was no other team like us in the Race Across America. A group of rookies, most of whom have little to no cycling experience (riders excepted), decide to join one borderline lunatic on a journey that even he would admit was crazy...Team FARA for short. Looking at what we accomplished, with a supporting cast of hundreds of amazing people - is it really that crazy to think that we could cure FA?
John Loves Powdered Donuts!
23.6.10
RAAM Media
Thank you to the RAAM media crew who was so good to us on the road.
I am still trying to wrap my head around this whole adventure. I let it sit for a day and watched a slideshow of photos tonight and was very emotional. I'm sad that it is over, but this is only the beginning for Team FARA. Stay tuned. . . . .
22.6.10
Time to go home...
Until the next great adventure...boomslam!
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21.6.10
20.6.10
Heading into the finish
Approaching our final 10 miles!
Check out www.raceacrossamerica.org for the live video stream of our finish in Annapolis!
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Heading into the finish
Approaching our final 10 miles!
Check out www.raceacrossamerica.org for the live video stream of our finish in Annapolis!
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Raam finish webcam
be crossing at around 1:27 east coast time... Will try to update with
a better time estimate the closer we get... 50 miles out!
Finish Strong
go. All 4 riders will ride the final 54.6 miles together from Mount
Airy, MD to Annapolis...may I suggest you join them?
Gettysburg
Gettysburg while the riders battle a few miles behind us. If that
doesn't paint the picture for you, see the photo.
Final push
final push. We have slowed down a bit in the rolling hills of
Pennsylvania. John and I just finished our toughest shift of the
entire trip and Sean and Mike are out battling the hills right now.
140 miles to go!
Sunrise climb
descent in West Virginia.
Almost there!
The Journey & the Friends You Take with You
And an added Happy Father's Day to Phil who is spending it on the road with the team and away from his little girls in CA. Thanks Phil.
19.6.10
Keith Michael Andrus, 12/21/1985 - 1/22/2010
Keith's diagnosis of Friedreich's ataxia at age 11, inspired his parents, Raychel and Ron Bartek, to join him in his fight, and found FARA. Even during the final and very challenging months of Keith's life he courageously continued to not only advocate for himself but for others with FA as he left no stone unturned exploring advanced and experimental treatment options. Keith’s legacy and inspiration lives on in Team FARA, pushing us forward, deepening our commitment and giving us a urgency.
We often quote Ron as saying, "Acting alone there is little any of us can accomplish whereas acting together there is little we will not accomplish." These words are deeply rooted in the FARA culture- the way we pursue treatments and a cure for FA and today as we complete this amazing journey, Keith is with us.
Happy Father's Day!
Thank you FA Dads. You monitored and followed our cyclists through sun and rain, light and darkness, mountains and windy plains. You did it on compromised sleep time and under stressful conditions. You did it because you love your kid and wanted to honor him/her with this service to the greater FA community. With the utmost respect-- Thank you.
And Happy Father's Day to my own Dad. Thanks for teaching me that there is nothing better than being a member of a team that has a worthy purpose.
West Virginia
range... Three states to go!!! Yippi!!!
Mikes sorry
ride 9 miles In 97 degree heat 50% humidity... I forgave him... Who
can resist that puppy dog face, lol
Healthy Break
have been kicking butt and had a rough, wet night last night so we
took 2 hours this afternoon to regroup and make the final push for the
finish. We reflected on the past week and we are all overehelmingly
proud of how far we have come but we realize that we are not done yet.
We just got back on the road more focused than ever with our sights
set on the finish line.
Predicted Time Station Arrivals Update
http://www.raceacrossamerica.org/raam/rcfrcast.php?s_N_Entry_IDx=2618&s_N_Year_ID=33
Join TEAM FARA
Join TEAM FARA!
Team FARA members are running, walking, biking and swimming for FA research around the world. While they are geographically dispersed, Team FARA is united with the same goal: to draw attention to FA through acts of physical endurance and to support the advancement of FA research towards treatments and a cure for FA.
About Team FARA
Team FARA is made up of people around the globe who participate in endurance events on behalf of the Friedreich's Ataxia Research Alliance (FARA) with the goal of raising awareness and funds for FA research. Past Team FARA members have registered as individuals and groups in local marathons, ½ marathons, triathlons, ironman competitions, bike tours and 5K runs. With the FARA name in their fundraising materials, local press releases, and on their race jerseys, Team FARA members are introducing the general public to this rare disease and the importance of supporting FA research.
Join Team FARA
You can join Team FARA simply by registering in a local athletic event of your choice and deciding to do so in FARA's name. FARA will provide a fundraising webpage for you to customize with a photo and information about your event participation. FARA will also work with you to generate a press release and a strategy for local press coverage of your endurance event and campaign for FA research. Finally, FARA will supply you with either a Team FARA running jersey or t-shirt to be worn at your event. Your supporters also have the opportunity to purchase Team FARA t-shirts to wear as they cheer you on.
If you're interested in joining Team FARA, please contact us at info@cureFA.org
If you are looking for an event, join me at Ride Ataxia Philadelphia, 10/10/10. This is a great event with distances for all levels of riders.
Most importantly, Get out there and Educate, Empower and Enable!
Blanchester
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Good morning!
the next shift looks to face another wet storm headed our way.
18.6.10
Saturday Challenge
As the team races through Ohio and West Virginia on Saturday lets see if we can get people to give up their chores and check out the blog.
Goal: 1000 visits to the blog on Saturday!
Hometown Friends
Indiana road. Emily and I went to highschool together and I am good
friends with her brother Matt. Thanks for the support!
Mike as McGyver
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Mike as McGyver
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It is all about the mission!
What is Friedreich's Ataxia (FA)?
Friedreich's Ataxia is a progressive, neurodegenerative condition that dramatically, unexpectedly alters lives causing:
*Loss of coordination and muscle weakness in the arms and legs
*Energy deprivation/fatigue
*Vision impairment, hearing loss, and slurred speech
*Agressive scoliosis
*Diabetes
*Life-shortening cardiac disease
What is FARA?
The Friedreich's Ataxia Research Allianceis a non-profit organization dedicated to curing Friedrech’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.
Today, individuals with FA are hopeful due to significant research breakthroughs that FARA has helped facilitate over the last decade. We are now in the "treatment era" as clinical trials are in progress. Each day, the FARA scientific community moves closer to realizing our goal of slowing, stopping, reversing and ultimately curing FA. Freedom from the debilitating, devastating effects of FA is on the horizon.
Learn more about FA, FARA and the research progress at:
http://www.curefa.org/
"Acting alone there is very little any of us can accomplish. Acting together, there is very little we will NOT accomplish."
Back to the road!
Yet another transition
kinda like life always adapting to situations and circumstances but
the main thing is that not all transitions are smooth sometimes they
don't go exactly as planned but if you push hard you will reach the
finish! Oh and just for the record I think the crew has our
transitions down to a science now... Haha it was a little rough going
in the beginning lol! Like when john left the transition area even
though the other ride hadn't made it there yet, we got the
comunication going now though!!!
Bubbles
are leapfrogging... Good thing cause I needed a pick-me-up this morning!
17.6.10
Can't sleep
I felt a positive shift in the morale entire team tonight as John and
I finished our riding shift. We had been getting a little sloppy with
our communication and rider/crew transitions and everyone was getting
a little frustrated...each person realized that something needed to
change so the crew got together briefly and addressed the concerns and
will work to make our machine run more efficiently. We are riding fast
and feeling great so if we clean up our act just a bit we will be in
Annapolis in no time. We can taste the finish line and it tastes great!
More Support
their bbq's and fed us pulled pork sandwiches, baked beans and Mark's
special cheese corn dish. So good!
Mark is one of the original supporters of Ride Ataxia. Thanks boys!
Rv driving
fast! Tracy is a champ though and helping seany clean it up!
Video of Team FARA in Action!
http://www.youtube.com/watch?v=6z4EFEFiOS8&feature=player_embedded
Wright Family
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16.6.10
Vista
Arizona - and up Mingus Mountain. From the top, we were privy to this
magnificent view of Haywood Canyon.
Running strong
comments from everyone. Thank you all for your support, thank you for
being a fire behind us giving motivation when nights get dark and the
miles get long. Know that just as much as we are in your thoughts that
you are in ours as well... The friends family I love you!
Maize/Wichita support
Bill, Marty, and families - thank you for your support! You'll never know how motivating and empowering you guys are for this team! Hope is alive and kicking (and pedaling too).
We will try to upload pictures from this rendezvous later.
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